I was very sick yesterday-- headache and sleepy the whole afternoon and I
complained the daddy cannot help anything.
I was very worried about Xinxin,--if I am sick, she will cry because she needs only me to stay with her 24 hours a day.Thank God, He healed me last night after a cup of hot water and some back massage by the daddy.
Today one of the patients mummy came to ask me why I am always very strong and positive. Her kid is not having cancer, but she cried many times. Instead of telling her that I also cried many times, I asked her not to waste time for being sad,which is not helpful for our kids at all.
And I shared a video with her--a story about a man called Nick born without limbs.He shared his experience of God's love.
It was recommended by two of my good friends--Yanqiong and Emily.
Please make sure that you watch this video and learn to trust and praise God in ALL circumstances!
http://www.youtube.com/watch?v=OSRj7JqURjc&feature=related
Detailed infor about this strong man of God can be found at
http://www.lifewithoutlimbs.org/
Tomorrow Dr. Chiang will discuss the pain control with the pain team. Dr. Chiang is still the team head of this week. Our doctor--Dr. Chan is on leave and he came to see us before Christmas.
Actually the pain doctor came to Xinxin twice a week to give suggestions. But always our doctor will just make decisions by themselves.
Xinxin is still very tired and can not sleep very well. And she wake up several time during night.
Please continue to pray for her.
Thank you.
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Oct.6th 2004--Jan.10th 2009
XinXin
Pray for Xinxin
Welcome to Shu Qin (pet name as Xinxin)'s web page. It has been provided to keep friends updated about Xinxin's progress as she battled stage 4 Neuroblastoma.
She was diagnosed on December 8th, 2007 in KK Women's and Children's hospital,Singapore. She had four rounds of Opec and Ojec Chemotherapy. And she had a twelve-hour surgery on April 2nd 2008. Then she had four rounds of N7 protocol since the biopsy of the tumor showed little response. She did two rounds of strong chemo( cyclophospha and topetecan)But the bone marrow trephine was still positive.
We came to Queen Mary Hospital Hong Kong on Oct2nd,2008 for further treatment. Xinxin had 2 cycle of chemotherapy (gemcitabine and oxaliplatin) and one round of 3F8.
Her disease had spread, very rapidly, to her pancreas and everywhere.
Xinxin passed away at 3pm on Jan 10th,2009(Saturday).Her last word is that DON'T WORRY ABOUT ME.
We miss Xinxin a lot but we won't worry about her anymore as she is living happily in God's arms.
As her parents we want to thank God for holding our hands walking with us and for giving us such a good gift that we learned a lot from and thank all the friends who are helping us. Thank you all for being our friends.
She was diagnosed on December 8th, 2007 in KK Women's and Children's hospital,Singapore. She had four rounds of Opec and Ojec Chemotherapy. And she had a twelve-hour surgery on April 2nd 2008. Then she had four rounds of N7 protocol since the biopsy of the tumor showed little response. She did two rounds of strong chemo( cyclophospha and topetecan)But the bone marrow trephine was still positive.
We came to Queen Mary Hospital Hong Kong on Oct2nd,2008 for further treatment. Xinxin had 2 cycle of chemotherapy (gemcitabine and oxaliplatin) and one round of 3F8.
Her disease had spread, very rapidly, to her pancreas and everywhere.
Xinxin passed away at 3pm on Jan 10th,2009(Saturday).Her last word is that DON'T WORRY ABOUT ME.
We miss Xinxin a lot but we won't worry about her anymore as she is living happily in God's arms.
As her parents we want to thank God for holding our hands walking with us and for giving us such a good gift that we learned a lot from and thank all the friends who are helping us. Thank you all for being our friends.
1 条评论:
your xin xin is adorable!
praying for her healing and that her pain will be relieved!
lara and family
mom of Hans
www.hansjourney.blogspot.com
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