Today Xinxin starts her VMA free diet. It will last for three days and on the 24th of Sep, I will collect her urine for 24 hours and send to KKH on the 25th of Sep. VAM level can tell whether she is still having cancer cells in her body. The VMA was 128 when she was diagnosed, and the last time her VMA is 9.5 in June. If the VMA is below 6.5 means negative. So Xinxin actually improves a lot .We should thank God for taking good care of Xinxin.
VMA free diet means that certain food she can not have during these fours days including collecting day also.Actually, it is fine for her because she couldn't tolerate many things. The only thing which she will miss a lot is banana .
Today many friends came to our home to pray for Xinxin. We enjoyed a lot for the praying part.They planned to give Xinxin a birthday party.We made dumplings at home and had a good time.The only thing is that Xinxin can only watch us eating dumplings. I only let her tried two instead of a bowl to make her full. So far so good. I think it is God who asked these good friends come to tell us the Xinxin can tolerate dumplings now. So maybe I will let her try more tomorrow.We haven't had dumplings for half a year since we don't want Xinxin to be disappointed without eating.
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Oct.6th 2004--Jan.10th 2009
XinXin
Pray for Xinxin
Welcome to Shu Qin (pet name as Xinxin)'s web page. It has been provided to keep friends updated about Xinxin's progress as she battled stage 4 Neuroblastoma.
She was diagnosed on December 8th, 2007 in KK Women's and Children's hospital,Singapore. She had four rounds of Opec and Ojec Chemotherapy. And she had a twelve-hour surgery on April 2nd 2008. Then she had four rounds of N7 protocol since the biopsy of the tumor showed little response. She did two rounds of strong chemo( cyclophospha and topetecan)But the bone marrow trephine was still positive.
We came to Queen Mary Hospital Hong Kong on Oct2nd,2008 for further treatment. Xinxin had 2 cycle of chemotherapy (gemcitabine and oxaliplatin) and one round of 3F8.
Her disease had spread, very rapidly, to her pancreas and everywhere.
Xinxin passed away at 3pm on Jan 10th,2009(Saturday).Her last word is that DON'T WORRY ABOUT ME.
We miss Xinxin a lot but we won't worry about her anymore as she is living happily in God's arms.
As her parents we want to thank God for holding our hands walking with us and for giving us such a good gift that we learned a lot from and thank all the friends who are helping us. Thank you all for being our friends.
She was diagnosed on December 8th, 2007 in KK Women's and Children's hospital,Singapore. She had four rounds of Opec and Ojec Chemotherapy. And she had a twelve-hour surgery on April 2nd 2008. Then she had four rounds of N7 protocol since the biopsy of the tumor showed little response. She did two rounds of strong chemo( cyclophospha and topetecan)But the bone marrow trephine was still positive.
We came to Queen Mary Hospital Hong Kong on Oct2nd,2008 for further treatment. Xinxin had 2 cycle of chemotherapy (gemcitabine and oxaliplatin) and one round of 3F8.
Her disease had spread, very rapidly, to her pancreas and everywhere.
Xinxin passed away at 3pm on Jan 10th,2009(Saturday).Her last word is that DON'T WORRY ABOUT ME.
We miss Xinxin a lot but we won't worry about her anymore as she is living happily in God's arms.
As her parents we want to thank God for holding our hands walking with us and for giving us such a good gift that we learned a lot from and thank all the friends who are helping us. Thank you all for being our friends.
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