Xinxin is fine today. We finished the 24 hours urine collection though she had very bad diarrhea. Thank God that Xinxin is so good to separate urine with stool in different basins. We will know the result early next week.
Due to her diarrhea, the doctor asked us to stay over the weekend and wait for the stool result. So far only a few yeasts was found. But yeast is normal in our body, and her diarrhea is quite bad(9 times). And then Xinxin's party on this coming Monday has to change to the ward instead of the Disney Theme restaurant. And the worst thing is that Xinxin threw my cell phone on the floor a few times and the last time was yesterday for the reason I myself still don't know. So ...
The CT scan result is out-the tumor is still there and is stable, which means it is the same size( at least it's not growing).
I don't know we should feel happy or sad. My husband is definitely very sad. It seems that the last two rounds of chemo is useless and only made her suffer.
But who knows what it is? Even the report writes that the mass is likely to tumor. So my understanding is we will have to wait for other results and see her progress. The good thing is that it is not growing.Let's just trust in God, He cares for Xinxin and of course is in charge of the results.And HE is more than able to deal with the issues in my life. 'Be anxious for nothing…."
Please continue to pray for Xinxin. Thanks you very much.
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Oct.6th 2004--Jan.10th 2009
XinXin
Pray for Xinxin
Welcome to Shu Qin (pet name as Xinxin)'s web page. It has been provided to keep friends updated about Xinxin's progress as she battled stage 4 Neuroblastoma.
She was diagnosed on December 8th, 2007 in KK Women's and Children's hospital,Singapore. She had four rounds of Opec and Ojec Chemotherapy. And she had a twelve-hour surgery on April 2nd 2008. Then she had four rounds of N7 protocol since the biopsy of the tumor showed little response. She did two rounds of strong chemo( cyclophospha and topetecan)But the bone marrow trephine was still positive.
We came to Queen Mary Hospital Hong Kong on Oct2nd,2008 for further treatment. Xinxin had 2 cycle of chemotherapy (gemcitabine and oxaliplatin) and one round of 3F8.
Her disease had spread, very rapidly, to her pancreas and everywhere.
Xinxin passed away at 3pm on Jan 10th,2009(Saturday).Her last word is that DON'T WORRY ABOUT ME.
We miss Xinxin a lot but we won't worry about her anymore as she is living happily in God's arms.
As her parents we want to thank God for holding our hands walking with us and for giving us such a good gift that we learned a lot from and thank all the friends who are helping us. Thank you all for being our friends.
She was diagnosed on December 8th, 2007 in KK Women's and Children's hospital,Singapore. She had four rounds of Opec and Ojec Chemotherapy. And she had a twelve-hour surgery on April 2nd 2008. Then she had four rounds of N7 protocol since the biopsy of the tumor showed little response. She did two rounds of strong chemo( cyclophospha and topetecan)But the bone marrow trephine was still positive.
We came to Queen Mary Hospital Hong Kong on Oct2nd,2008 for further treatment. Xinxin had 2 cycle of chemotherapy (gemcitabine and oxaliplatin) and one round of 3F8.
Her disease had spread, very rapidly, to her pancreas and everywhere.
Xinxin passed away at 3pm on Jan 10th,2009(Saturday).Her last word is that DON'T WORRY ABOUT ME.
We miss Xinxin a lot but we won't worry about her anymore as she is living happily in God's arms.
As her parents we want to thank God for holding our hands walking with us and for giving us such a good gift that we learned a lot from and thank all the friends who are helping us. Thank you all for being our friends.
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