Xinxin is still complaining leg pain. She didn't sleep well last night--kept waking up due to the pain in the leg.
The daddy called the ward and they wanted us to send her to the ward. But I emailed Dr. Chan again to ask for his opinion. Actually, I can aslo call him, but I just hate to disturb the doctors by calling them, because they are really very busy. I emailed him to explain the situation and hope he can find the results of the MIBG and bone scans.
Thank God,he called the daddy and emailed to tell that they got the report of the scans and the plan is to start her on 2 cycle of chemotherapy (gemcitabine and oxaliplatin) and add antibody probably at the second course then see the response. And we will admit tomorrow instead of Oct29 as planned. So we are all happy about that.I had to talk to Xinxin about the admission to let her also get prepared.
The 2 drugs that Dr Chan prescribed are new drugs that are not provided by the Government. It will cost around HK$7800 for gemcitabine and HK$2200 for oxaliplatin for one course as they remember, but Dr.Chan is not sure about the price, The quotation was based on the previous patient's information and there may be some difference as of now .
Please continue to pray for Xinxin. Thank you and wish all a relaxing weekend.
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Oct.6th 2004--Jan.10th 2009
XinXin
Pray for Xinxin
Welcome to Shu Qin (pet name as Xinxin)'s web page. It has been provided to keep friends updated about Xinxin's progress as she battled stage 4 Neuroblastoma.
She was diagnosed on December 8th, 2007 in KK Women's and Children's hospital,Singapore. She had four rounds of Opec and Ojec Chemotherapy. And she had a twelve-hour surgery on April 2nd 2008. Then she had four rounds of N7 protocol since the biopsy of the tumor showed little response. She did two rounds of strong chemo( cyclophospha and topetecan)But the bone marrow trephine was still positive.
We came to Queen Mary Hospital Hong Kong on Oct2nd,2008 for further treatment. Xinxin had 2 cycle of chemotherapy (gemcitabine and oxaliplatin) and one round of 3F8.
Her disease had spread, very rapidly, to her pancreas and everywhere.
Xinxin passed away at 3pm on Jan 10th,2009(Saturday).Her last word is that DON'T WORRY ABOUT ME.
We miss Xinxin a lot but we won't worry about her anymore as she is living happily in God's arms.
As her parents we want to thank God for holding our hands walking with us and for giving us such a good gift that we learned a lot from and thank all the friends who are helping us. Thank you all for being our friends.
She was diagnosed on December 8th, 2007 in KK Women's and Children's hospital,Singapore. She had four rounds of Opec and Ojec Chemotherapy. And she had a twelve-hour surgery on April 2nd 2008. Then she had four rounds of N7 protocol since the biopsy of the tumor showed little response. She did two rounds of strong chemo( cyclophospha and topetecan)But the bone marrow trephine was still positive.
We came to Queen Mary Hospital Hong Kong on Oct2nd,2008 for further treatment. Xinxin had 2 cycle of chemotherapy (gemcitabine and oxaliplatin) and one round of 3F8.
Her disease had spread, very rapidly, to her pancreas and everywhere.
Xinxin passed away at 3pm on Jan 10th,2009(Saturday).Her last word is that DON'T WORRY ABOUT ME.
We miss Xinxin a lot but we won't worry about her anymore as she is living happily in God's arms.
As her parents we want to thank God for holding our hands walking with us and for giving us such a good gift that we learned a lot from and thank all the friends who are helping us. Thank you all for being our friends.
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