Xinxin is still in the isolate room, the test result may come out after tomorrow, then she can back to the common ward, the isolate room has much rules for the visits, only one parent can stay inside one time, and you should wash hands before in and after out, wear a purple all the time, it's quiet than in common ward, it's boring beacuse no one you can talk with.
The doctor in charge of Xinxin came to ward everyday, and told us he will try his best to cure Xinxin, and tomorrow Xinxin will begin the 3F8 treatment protocol, so far now, it's a miracle on the world for those neuroblastoma, because it greatly improve the cure rate of high risk neuroblastoma. pain is the main effect, but that means the anti body is attached to neuroblastoma cell and kill it, thanks to Dr. Godfrey Chan, he is a so kind and professional doctor, he told us many new treatment methods are arised in US, if necessary, Xinxin can take it.
It's really grateful to Dr.chan for accepting Xinxin to admit into Queen Mary hospital HK, a famous hospital on the world.
It's cold in HK now, not like in Singapore that every day is in summer, so we begin to buy some
clothing for us, thanks to all of you, some friends in singapore have given the winter clothes to Xinxin before we left singapore, so we don't worry about that for Xinxin.
The following 3F8 treatment will last for one week, xinxin's mummy will stay in QMH for one week and maybe can't update the blog everyday. Please continue pray for Xinxin and thanks for all your comments and consideration to us.
Thank you so muh.
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Oct.6th 2004--Jan.10th 2009
XinXin
Pray for Xinxin
Welcome to Shu Qin (pet name as Xinxin)'s web page. It has been provided to keep friends updated about Xinxin's progress as she battled stage 4 Neuroblastoma.
She was diagnosed on December 8th, 2007 in KK Women's and Children's hospital,Singapore. She had four rounds of Opec and Ojec Chemotherapy. And she had a twelve-hour surgery on April 2nd 2008. Then she had four rounds of N7 protocol since the biopsy of the tumor showed little response. She did two rounds of strong chemo( cyclophospha and topetecan)But the bone marrow trephine was still positive.
We came to Queen Mary Hospital Hong Kong on Oct2nd,2008 for further treatment. Xinxin had 2 cycle of chemotherapy (gemcitabine and oxaliplatin) and one round of 3F8.
Her disease had spread, very rapidly, to her pancreas and everywhere.
Xinxin passed away at 3pm on Jan 10th,2009(Saturday).Her last word is that DON'T WORRY ABOUT ME.
We miss Xinxin a lot but we won't worry about her anymore as she is living happily in God's arms.
As her parents we want to thank God for holding our hands walking with us and for giving us such a good gift that we learned a lot from and thank all the friends who are helping us. Thank you all for being our friends.
She was diagnosed on December 8th, 2007 in KK Women's and Children's hospital,Singapore. She had four rounds of Opec and Ojec Chemotherapy. And she had a twelve-hour surgery on April 2nd 2008. Then she had four rounds of N7 protocol since the biopsy of the tumor showed little response. She did two rounds of strong chemo( cyclophospha and topetecan)But the bone marrow trephine was still positive.
We came to Queen Mary Hospital Hong Kong on Oct2nd,2008 for further treatment. Xinxin had 2 cycle of chemotherapy (gemcitabine and oxaliplatin) and one round of 3F8.
Her disease had spread, very rapidly, to her pancreas and everywhere.
Xinxin passed away at 3pm on Jan 10th,2009(Saturday).Her last word is that DON'T WORRY ABOUT ME.
We miss Xinxin a lot but we won't worry about her anymore as she is living happily in God's arms.
As her parents we want to thank God for holding our hands walking with us and for giving us such a good gift that we learned a lot from and thank all the friends who are helping us. Thank you all for being our friends.
1 条评论:
I know exactly where you guys are staying at (K7N, right?). It's brutal there and I totally hated it where we were there. Hang in there, hopefully the result will come back negative and you'll return to C6. May Xin Xin respond well to her first 3F8 treatment tomorrow. You guys are in our thoughts.
Take care,
Jenn & Adrian
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