Xinxin is doing fine today. She slept very well last night and me too. She played the computer games the whole day without a nap and is sleeping sweetly now with both the daddy and mommy beside her. The patches are really working very well with less side effect.
Actually the doctor wanted to cut down the base line of the morphine, but we are too scared of the pain, so it's still 2ml per hour.
The bolus is still 1.5ml for the PCA machine. But we didn't press that much today as she is not in much pain. And we are planning a trip to Ocean park which is near Queen Mary Hospital for Xinxin if she is still feeling well next week.Please pray for that.
The blood culture result showed still positive. So we are still using the the Peripheral line for morphine and platelets and so on. And the portacath is only for antibiotics. They will check the blood again next week.
Please continue to pray for Xinxin and thank you for your concern and help.
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Oct.6th 2004--Jan.10th 2009
XinXin
Pray for Xinxin
Welcome to Shu Qin (pet name as Xinxin)'s web page. It has been provided to keep friends updated about Xinxin's progress as she battled stage 4 Neuroblastoma.
She was diagnosed on December 8th, 2007 in KK Women's and Children's hospital,Singapore. She had four rounds of Opec and Ojec Chemotherapy. And she had a twelve-hour surgery on April 2nd 2008. Then she had four rounds of N7 protocol since the biopsy of the tumor showed little response. She did two rounds of strong chemo( cyclophospha and topetecan)But the bone marrow trephine was still positive.
We came to Queen Mary Hospital Hong Kong on Oct2nd,2008 for further treatment. Xinxin had 2 cycle of chemotherapy (gemcitabine and oxaliplatin) and one round of 3F8.
Her disease had spread, very rapidly, to her pancreas and everywhere.
Xinxin passed away at 3pm on Jan 10th,2009(Saturday).Her last word is that DON'T WORRY ABOUT ME.
We miss Xinxin a lot but we won't worry about her anymore as she is living happily in God's arms.
As her parents we want to thank God for holding our hands walking with us and for giving us such a good gift that we learned a lot from and thank all the friends who are helping us. Thank you all for being our friends.
She was diagnosed on December 8th, 2007 in KK Women's and Children's hospital,Singapore. She had four rounds of Opec and Ojec Chemotherapy. And she had a twelve-hour surgery on April 2nd 2008. Then she had four rounds of N7 protocol since the biopsy of the tumor showed little response. She did two rounds of strong chemo( cyclophospha and topetecan)But the bone marrow trephine was still positive.
We came to Queen Mary Hospital Hong Kong on Oct2nd,2008 for further treatment. Xinxin had 2 cycle of chemotherapy (gemcitabine and oxaliplatin) and one round of 3F8.
Her disease had spread, very rapidly, to her pancreas and everywhere.
Xinxin passed away at 3pm on Jan 10th,2009(Saturday).Her last word is that DON'T WORRY ABOUT ME.
We miss Xinxin a lot but we won't worry about her anymore as she is living happily in God's arms.
As her parents we want to thank God for holding our hands walking with us and for giving us such a good gift that we learned a lot from and thank all the friends who are helping us. Thank you all for being our friends.
2 条评论:
Happy to know that you guys can have a little "reunion" at K8N. Hope you will have fun in Ocean Park next week. Remember to dress warm in this cold weather.
Jenn & Adrian
祝福心心高高兴兴每一天
pray for Xinxin
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