During Xinxin's treatment, we are very fortunate to find two NB family group.
One is an international one--parents,relatives of NB and even including some doctors and volunteers.In this group, there are families who win the battle, who are doing treatment, who are you fighting the relapsed beast and who have lost their dear kids like us. You can find answers to any questions you can think of very fast and effectively because there are thousands of parents there, yes I forgot to mention about the patients--some long time survivor are as old as my age or even older.
The other group is made up of all the NB parents in China who are doing treatment. It's quite different, this group, I am the only one who lost the kid. Because parents will quit and never appear in this group once they lost the battle or give up treating.There are quite a number of kids were given up because of various reasons in China which I seldom see in other countries. I guess it must be very painful for the parents to make the decision.
I had a very busy day talking with NB parents in China through net.We were discussing why our kids have NB the whole day. Mainly they believe two reasons--genes and medication from abortion before the NB kid. I don't agree with either one. As for as I know,nobody had cancer in my husband and my family. Xinxin is our first and very precious baby. Of course every kid is precious of the parents, but to us, Xinxin is really precious, because my husband's blood type and mine will cause some problem if we try to have more later. I don't know what exactly problem it will be because at that time I never thought I would have more than one as China's family plan--one couple one kid.
We are still asking Whys and Hows, and my husband tells me that he would do research in childhood research if time could go back to ten years ago. I always laugh at him" who do you think you are? Can find a cure for NB?" "At least we could diagnose her earlier" Yes, what if Xinxin could be diagnosed earlier? Who knows? Time definitely cannot go back, we have to look forward,but we just can't help thinking...
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Oct.6th 2004--Jan.10th 2009
XinXin
Pray for Xinxin
Welcome to Shu Qin (pet name as Xinxin)'s web page. It has been provided to keep friends updated about Xinxin's progress as she battled stage 4 Neuroblastoma.
She was diagnosed on December 8th, 2007 in KK Women's and Children's hospital,Singapore. She had four rounds of Opec and Ojec Chemotherapy. And she had a twelve-hour surgery on April 2nd 2008. Then she had four rounds of N7 protocol since the biopsy of the tumor showed little response. She did two rounds of strong chemo( cyclophospha and topetecan)But the bone marrow trephine was still positive.
We came to Queen Mary Hospital Hong Kong on Oct2nd,2008 for further treatment. Xinxin had 2 cycle of chemotherapy (gemcitabine and oxaliplatin) and one round of 3F8.
Her disease had spread, very rapidly, to her pancreas and everywhere.
Xinxin passed away at 3pm on Jan 10th,2009(Saturday).Her last word is that DON'T WORRY ABOUT ME.
We miss Xinxin a lot but we won't worry about her anymore as she is living happily in God's arms.
As her parents we want to thank God for holding our hands walking with us and for giving us such a good gift that we learned a lot from and thank all the friends who are helping us. Thank you all for being our friends.
She was diagnosed on December 8th, 2007 in KK Women's and Children's hospital,Singapore. She had four rounds of Opec and Ojec Chemotherapy. And she had a twelve-hour surgery on April 2nd 2008. Then she had four rounds of N7 protocol since the biopsy of the tumor showed little response. She did two rounds of strong chemo( cyclophospha and topetecan)But the bone marrow trephine was still positive.
We came to Queen Mary Hospital Hong Kong on Oct2nd,2008 for further treatment. Xinxin had 2 cycle of chemotherapy (gemcitabine and oxaliplatin) and one round of 3F8.
Her disease had spread, very rapidly, to her pancreas and everywhere.
Xinxin passed away at 3pm on Jan 10th,2009(Saturday).Her last word is that DON'T WORRY ABOUT ME.
We miss Xinxin a lot but we won't worry about her anymore as she is living happily in God's arms.
As her parents we want to thank God for holding our hands walking with us and for giving us such a good gift that we learned a lot from and thank all the friends who are helping us. Thank you all for being our friends.
1 条评论:
Just a short eassy I want to share with u.. Hope you and your husband can be strong and couragous and live life to the fullest.
http://www.ikedaquotes.org/loss.html
Stella
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