I have to write a quick update,because Xinxin is sleeping in the ward, and I am in the family room.Pray God will let me finish before xinxin cries.
Do you want to listen to the good news or the sad news first.
Ok, let me say the sad news first:Xinxin was quite upsad at the noon time, so I leave the nurse to access the port(putting the needles to her port), she was not vrying when they were doing this as usal. But after I went in, I found they only put two three-way-tap there. So I asked the nurse why only three, because I remember last time they put three there, and they are going to give her the same protocol. Then the nurse-in-charge came to explain to me reasonally. I just ask them to check her last round of Chemo. Finally, they told me the doctor wrote the wrong protocol. Is it very sad that they did not know which chemo they will start for Xinxin.
The good thing is that God gives me good memory this time(I usually have very poor memory) to remember it and encourages me to ask before they started her Chemo( they only started pre hydration when I found out by myself). So God watches over Xinxin closely, he is not going to let any mistakes happen to Xinxin. What we need is just to pray.Pray for the wisdom of the doctors and teh nurses.
So please continue to pray.
The great thing is that Xinxin said a good prayer for herself before I started mine before she went to sleep just now. Her pray is like this: Hope I can go home soon and no vomitting and no fever. And I believe this is God's will also.
Finally I met my CCF social worker--she is trying to help us and still no result. She left a question for me-Is it too many people to look after Xinxin( me and my parents)?
If you read our Chinese Blog, you will know our MP-prof Ho and Mr.Ten Ming. They really concern Xinxin. Mr. Tan was really kind enough to use his own money to buy Xinxin six big tins of milk powder. He was surprised when he knows that CCF never helps us with any bills so far. He thought they are helping us with all the bills. And Our MP is going to write letters to them again and hopefully the application of our bills from CCF will have result soon.
I want to thank all these good people who really care about Xinxin and who are helping us and praying for Xinxin. What I know is that GOd will prepare everything for us, I just take care of Xinxin and pray for her.
Thank you very much. Please continue to pray.
Thank God that so far Xinxin is still sleeping.
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Oct.6th 2004--Jan.10th 2009
XinXin
Pray for Xinxin
Welcome to Shu Qin (pet name as Xinxin)'s web page. It has been provided to keep friends updated about Xinxin's progress as she battled stage 4 Neuroblastoma.
She was diagnosed on December 8th, 2007 in KK Women's and Children's hospital,Singapore. She had four rounds of Opec and Ojec Chemotherapy. And she had a twelve-hour surgery on April 2nd 2008. Then she had four rounds of N7 protocol since the biopsy of the tumor showed little response. She did two rounds of strong chemo( cyclophospha and topetecan)But the bone marrow trephine was still positive.
We came to Queen Mary Hospital Hong Kong on Oct2nd,2008 for further treatment. Xinxin had 2 cycle of chemotherapy (gemcitabine and oxaliplatin) and one round of 3F8.
Her disease had spread, very rapidly, to her pancreas and everywhere.
Xinxin passed away at 3pm on Jan 10th,2009(Saturday).Her last word is that DON'T WORRY ABOUT ME.
We miss Xinxin a lot but we won't worry about her anymore as she is living happily in God's arms.
As her parents we want to thank God for holding our hands walking with us and for giving us such a good gift that we learned a lot from and thank all the friends who are helping us. Thank you all for being our friends.
She was diagnosed on December 8th, 2007 in KK Women's and Children's hospital,Singapore. She had four rounds of Opec and Ojec Chemotherapy. And she had a twelve-hour surgery on April 2nd 2008. Then she had four rounds of N7 protocol since the biopsy of the tumor showed little response. She did two rounds of strong chemo( cyclophospha and topetecan)But the bone marrow trephine was still positive.
We came to Queen Mary Hospital Hong Kong on Oct2nd,2008 for further treatment. Xinxin had 2 cycle of chemotherapy (gemcitabine and oxaliplatin) and one round of 3F8.
Her disease had spread, very rapidly, to her pancreas and everywhere.
Xinxin passed away at 3pm on Jan 10th,2009(Saturday).Her last word is that DON'T WORRY ABOUT ME.
We miss Xinxin a lot but we won't worry about her anymore as she is living happily in God's arms.
As her parents we want to thank God for holding our hands walking with us and for giving us such a good gift that we learned a lot from and thank all the friends who are helping us. Thank you all for being our friends.
2 条评论:
Thank GOD you caught this in time. Still praying for you here in Michigan. Hus and prayers. Carolyn Wing grandma to Laura Stage IV neuroblastoma carepages.com page name LauraVDB carolyn_wing@yahoo.com
yes, peace be with you knowing that God's watching and in control of everything. Blessings...
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