Thank God, we had a peaceful day at home.And today is the first day we feel full in HK since we cooked ourselves at home. The outside food here is very exppensive and not nice.
It was raining very heavily in the morning, so we had to stay at home.
Xinxin's appetite is as good as before-kept asking for food. Now she loves noodles very much instead of porridge. In the afternoon, we brought her to the playground downstairs and she had a great time. Tomorrow she was supposed to admit again, but the daddy called the ward to ask if we could go on Wednesday since Tuesday is a public holiday and her doctor-Dr. Chan is coming back from overseas on Wednesday. But we can only know the result tomorrow morning after the nurse discuss with the doctors.
Since the daddy is working tomorrow morning, Xinxin is sleeping very early today, but she complained the left leg pain after almost fell asleep. I will have to observe first.
Please continue to pray for Xinxin, thank you.
Wish everyone a blessed week ahead of you.
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Oct.6th 2004--Jan.10th 2009
XinXin
Pray for Xinxin
Welcome to Shu Qin (pet name as Xinxin)'s web page. It has been provided to keep friends updated about Xinxin's progress as she battled stage 4 Neuroblastoma.
She was diagnosed on December 8th, 2007 in KK Women's and Children's hospital,Singapore. She had four rounds of Opec and Ojec Chemotherapy. And she had a twelve-hour surgery on April 2nd 2008. Then she had four rounds of N7 protocol since the biopsy of the tumor showed little response. She did two rounds of strong chemo( cyclophospha and topetecan)But the bone marrow trephine was still positive.
We came to Queen Mary Hospital Hong Kong on Oct2nd,2008 for further treatment. Xinxin had 2 cycle of chemotherapy (gemcitabine and oxaliplatin) and one round of 3F8.
Her disease had spread, very rapidly, to her pancreas and everywhere.
Xinxin passed away at 3pm on Jan 10th,2009(Saturday).Her last word is that DON'T WORRY ABOUT ME.
We miss Xinxin a lot but we won't worry about her anymore as she is living happily in God's arms.
As her parents we want to thank God for holding our hands walking with us and for giving us such a good gift that we learned a lot from and thank all the friends who are helping us. Thank you all for being our friends.
She was diagnosed on December 8th, 2007 in KK Women's and Children's hospital,Singapore. She had four rounds of Opec and Ojec Chemotherapy. And she had a twelve-hour surgery on April 2nd 2008. Then she had four rounds of N7 protocol since the biopsy of the tumor showed little response. She did two rounds of strong chemo( cyclophospha and topetecan)But the bone marrow trephine was still positive.
We came to Queen Mary Hospital Hong Kong on Oct2nd,2008 for further treatment. Xinxin had 2 cycle of chemotherapy (gemcitabine and oxaliplatin) and one round of 3F8.
Her disease had spread, very rapidly, to her pancreas and everywhere.
Xinxin passed away at 3pm on Jan 10th,2009(Saturday).Her last word is that DON'T WORRY ABOUT ME.
We miss Xinxin a lot but we won't worry about her anymore as she is living happily in God's arms.
As her parents we want to thank God for holding our hands walking with us and for giving us such a good gift that we learned a lot from and thank all the friends who are helping us. Thank you all for being our friends.
3 条评论:
If still can't get the needle, email me your address. I will try to buy from Dr Chui and post it to you as soon as possible.
Take care.
Pat
Dear Pat,
Thank you very much for you kind offer. I will let you know if we can not get it.
Please take care of yourself. Miss you.
Joy
Glad to hear you're settling down nicely... and there's a playground too for Xinxin! that's nice.
Take care
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