Dear friend,I am sorry I couldn't update Xinxin's situation since we didn't bring to the laptop to the hospital.
Yesterday we admitted to QMH in the afternoon. And she only had the injection for the MIBG scan.
Today is her first day for the MIBG scan which lasted from10am to 1:30 pm. The doctors were impressed by Xinxin. She is really good to control herself. She just stayed still without sedation.
Tomorrow we will have a shorter time of the same scan again.
For the tummy, the doctor will book an ultrasound for her.
And we met her doctor, also Dr.Chan-who is also a really good and kind doctor. And his plan for Xinxin will probably be like Chemo+MIBG treatment,+ 3F8 antibody.The MIBG treatment and 3F8 is the best treatment in the world for neuroblastoma. So far in the world, there are only two hospitals provide 3F8, except QMH, the other one is in New York. The 3F8 in QMH was also bought from USA. Before we came to HK, Dr. Chan was not very willing to let us try 3F8 since it is very limited.So we thank God to let Dr.Chan change his mind suddenly.The details of the plan will come out when Xinxin finishes her scan this Friday.
Please continue to pray for Xinxin.Thank you a lot.
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Oct.6th 2004--Jan.10th 2009
XinXin
Pray for Xinxin
Welcome to Shu Qin (pet name as Xinxin)'s web page. It has been provided to keep friends updated about Xinxin's progress as she battled stage 4 Neuroblastoma.
She was diagnosed on December 8th, 2007 in KK Women's and Children's hospital,Singapore. She had four rounds of Opec and Ojec Chemotherapy. And she had a twelve-hour surgery on April 2nd 2008. Then she had four rounds of N7 protocol since the biopsy of the tumor showed little response. She did two rounds of strong chemo( cyclophospha and topetecan)But the bone marrow trephine was still positive.
We came to Queen Mary Hospital Hong Kong on Oct2nd,2008 for further treatment. Xinxin had 2 cycle of chemotherapy (gemcitabine and oxaliplatin) and one round of 3F8.
Her disease had spread, very rapidly, to her pancreas and everywhere.
Xinxin passed away at 3pm on Jan 10th,2009(Saturday).Her last word is that DON'T WORRY ABOUT ME.
We miss Xinxin a lot but we won't worry about her anymore as she is living happily in God's arms.
As her parents we want to thank God for holding our hands walking with us and for giving us such a good gift that we learned a lot from and thank all the friends who are helping us. Thank you all for being our friends.
She was diagnosed on December 8th, 2007 in KK Women's and Children's hospital,Singapore. She had four rounds of Opec and Ojec Chemotherapy. And she had a twelve-hour surgery on April 2nd 2008. Then she had four rounds of N7 protocol since the biopsy of the tumor showed little response. She did two rounds of strong chemo( cyclophospha and topetecan)But the bone marrow trephine was still positive.
We came to Queen Mary Hospital Hong Kong on Oct2nd,2008 for further treatment. Xinxin had 2 cycle of chemotherapy (gemcitabine and oxaliplatin) and one round of 3F8.
Her disease had spread, very rapidly, to her pancreas and everywhere.
Xinxin passed away at 3pm on Jan 10th,2009(Saturday).Her last word is that DON'T WORRY ABOUT ME.
We miss Xinxin a lot but we won't worry about her anymore as she is living happily in God's arms.
As her parents we want to thank God for holding our hands walking with us and for giving us such a good gift that we learned a lot from and thank all the friends who are helping us. Thank you all for being our friends.
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