We are back home today. Xinxin did the MIBG scan again today.The doctors decided to discharge us and we will go back to see them in the clinics when the results are out.The appointment is on Oct 27th, which I think it is too long for us to wait, because Xinxin's last round of Chemo was on Sep 1st in KKH, and her counts are very good now-Anc was 2.66 last week.So I emailed the doctors and hope they will arrange it earlier.
I guess let's just pray for either Xinxin will be protected or the doctor will ask us to meet them as soon as they got the results and have a plan for Xinxin.
Xinxin is fine but started to complain the leg pain, and she can not walk properly if she walks. Actually she seldom walks at all, even when I carry her, she will scream if I touch some parts of her right leg. I am worried, and don't know what's wrong with her leg.
Please pray for that and pray for the wisdom of the doctors to make the best plan for Xinxin.Thanks a lot
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Oct.6th 2004--Jan.10th 2009
XinXin
Pray for Xinxin
Welcome to Shu Qin (pet name as Xinxin)'s web page. It has been provided to keep friends updated about Xinxin's progress as she battled stage 4 Neuroblastoma.
She was diagnosed on December 8th, 2007 in KK Women's and Children's hospital,Singapore. She had four rounds of Opec and Ojec Chemotherapy. And she had a twelve-hour surgery on April 2nd 2008. Then she had four rounds of N7 protocol since the biopsy of the tumor showed little response. She did two rounds of strong chemo( cyclophospha and topetecan)But the bone marrow trephine was still positive.
We came to Queen Mary Hospital Hong Kong on Oct2nd,2008 for further treatment. Xinxin had 2 cycle of chemotherapy (gemcitabine and oxaliplatin) and one round of 3F8.
Her disease had spread, very rapidly, to her pancreas and everywhere.
Xinxin passed away at 3pm on Jan 10th,2009(Saturday).Her last word is that DON'T WORRY ABOUT ME.
We miss Xinxin a lot but we won't worry about her anymore as she is living happily in God's arms.
As her parents we want to thank God for holding our hands walking with us and for giving us such a good gift that we learned a lot from and thank all the friends who are helping us. Thank you all for being our friends.
She was diagnosed on December 8th, 2007 in KK Women's and Children's hospital,Singapore. She had four rounds of Opec and Ojec Chemotherapy. And she had a twelve-hour surgery on April 2nd 2008. Then she had four rounds of N7 protocol since the biopsy of the tumor showed little response. She did two rounds of strong chemo( cyclophospha and topetecan)But the bone marrow trephine was still positive.
We came to Queen Mary Hospital Hong Kong on Oct2nd,2008 for further treatment. Xinxin had 2 cycle of chemotherapy (gemcitabine and oxaliplatin) and one round of 3F8.
Her disease had spread, very rapidly, to her pancreas and everywhere.
Xinxin passed away at 3pm on Jan 10th,2009(Saturday).Her last word is that DON'T WORRY ABOUT ME.
We miss Xinxin a lot but we won't worry about her anymore as she is living happily in God's arms.
As her parents we want to thank God for holding our hands walking with us and for giving us such a good gift that we learned a lot from and thank all the friends who are helping us. Thank you all for being our friends.
3 条评论:
Dear Lord, pls watch over Xin xin and have mercy on her. May you be her shield!
Yes, Joy. Please ask the doctors to push forward the chemo treatment. 1st sept was a long time. May God have mercy upon her and be with all of you always. I'll read her update every day to pray for her. May God give both of you, her parents strength too.
Pat
Amen
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