Thank God we got the Internet today finally.
Thank you for your concern.And I am sorry for not replying your emails and messages.Xinxin's situation is getting worse .She is on Morphine 24 hours a day and still needs to add the dose every day. She is also on TPN started from last Thursday. But she started to take some noodles and the tummy is better.
As for the treatment, we discussed with the doctors, and decided not to do the surgery for Xinxin first. we want to try the new chemo first.The 3F8 treatment did a great job for the bone disease. Her shoulder is no more swollen and only the leg is very pain.The doctor will do the radiotherapy for the leg first. But we need to wait for her turn for the radiotherapy although they sent her case as urgent.
And we are waiting for her count to be good enough for the next round of Chemo.
She had fever started from Saturday and is on antibiotics.So we are still keeping the hope although the doctor told us to get the worst preparation.
let's just pray the best for Xinxin.Thanks.