In the past few weeks I was being very sad by hearing a NB kid relapsed who we met in Singapore.The parents are quite nice and they gave us a lot positive attitude during our treatment in Singapore.But when finally they told me that they are not going to do any treatment, I was rather shocked. After talking with them a few times, I guess this is the best choice they can do for their beloved child.
There are no adequate words, just sending prayers and love to the child and the family.
As for us, we are very grateful that we are receiving the best treatment--the three head doctors--Dr. Chiang, Dr. Chan,and Dr. Ha came to see Xinxin and talk with the pain doctor. Finally they add one drug called Ketamine to her by IV in low dose.
Praise the Lord that the blood culture result came back to be negative.
So that means Xinxin can use her own hands to do Art and Craft and play computer games tomorrow.
Xinxin was very fussy when hearing about the tube feeding for her. So I need to talk with her tomorrow again to see if she will accept the tube from her nose to her stomach, which sounds terrible, but doesn't hurt much as the doctors and nurses said..
But anyway she had a great time with her favorite CCF staff --Sister Tian.Here I want to thank her as she also prays for Xinxin as well as playing games and gave her a lot of surprises.
Yes, unfortunately we have to face cancer,but we are are really lucky to have so many angels around us everywhere
Every single one meant so much to us and truly touched our hearts.
Thank yo very much, and pleas continue to pray for Xinxin.
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Oct.6th 2004--Jan.10th 2009
XinXin
Pray for Xinxin
Welcome to Shu Qin (pet name as Xinxin)'s web page. It has been provided to keep friends updated about Xinxin's progress as she battled stage 4 Neuroblastoma.
She was diagnosed on December 8th, 2007 in KK Women's and Children's hospital,Singapore. She had four rounds of Opec and Ojec Chemotherapy. And she had a twelve-hour surgery on April 2nd 2008. Then she had four rounds of N7 protocol since the biopsy of the tumor showed little response. She did two rounds of strong chemo( cyclophospha and topetecan)But the bone marrow trephine was still positive.
We came to Queen Mary Hospital Hong Kong on Oct2nd,2008 for further treatment. Xinxin had 2 cycle of chemotherapy (gemcitabine and oxaliplatin) and one round of 3F8.
Her disease had spread, very rapidly, to her pancreas and everywhere.
Xinxin passed away at 3pm on Jan 10th,2009(Saturday).Her last word is that DON'T WORRY ABOUT ME.
We miss Xinxin a lot but we won't worry about her anymore as she is living happily in God's arms.
As her parents we want to thank God for holding our hands walking with us and for giving us such a good gift that we learned a lot from and thank all the friends who are helping us. Thank you all for being our friends.
She was diagnosed on December 8th, 2007 in KK Women's and Children's hospital,Singapore. She had four rounds of Opec and Ojec Chemotherapy. And she had a twelve-hour surgery on April 2nd 2008. Then she had four rounds of N7 protocol since the biopsy of the tumor showed little response. She did two rounds of strong chemo( cyclophospha and topetecan)But the bone marrow trephine was still positive.
We came to Queen Mary Hospital Hong Kong on Oct2nd,2008 for further treatment. Xinxin had 2 cycle of chemotherapy (gemcitabine and oxaliplatin) and one round of 3F8.
Her disease had spread, very rapidly, to her pancreas and everywhere.
Xinxin passed away at 3pm on Jan 10th,2009(Saturday).Her last word is that DON'T WORRY ABOUT ME.
We miss Xinxin a lot but we won't worry about her anymore as she is living happily in God's arms.
As her parents we want to thank God for holding our hands walking with us and for giving us such a good gift that we learned a lot from and thank all the friends who are helping us. Thank you all for being our friends.
2 条评论:
Glad to know that XinXin is well taken care of under the skillful hands of the doctors. Sounded the move to HK for further treatment is totally worth it! Btw, we'll be at K8S tomorrow afternoon for Adrian's post BMT vaccination. Let see if you have time to pop by...
Jenn & Adrian
Yes, Joy...
I'm very sad to hear that the poor boy has this terrible disease again. It's bothering me very much too. God, pls keep our kids healthy...
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