While I was thinking very hard how to refuse Xinxin's God parents' kind invitation, God has already made the decision for us.It has been raining for two days, so they have to put off the plan of their trip. Isn't God really nice?
One of my friends came to see me and cried loudly in front of me and my parents,which I don't really like.She cried because she cannot accept the fact that I lost my daughter. I never cry before my parents, because I know that they are also VERY VERY sad already, and I don't want to make them sadder. Always, I never talk about Xinxin's last few days with friends. And I try to talk some other things. I understand people's feeling, but sometimes it seems that some people don't understand our aching heart.
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Oct.6th 2004--Jan.10th 2009
XinXin
Pray for Xinxin
Welcome to Shu Qin (pet name as Xinxin)'s web page. It has been provided to keep friends updated about Xinxin's progress as she battled stage 4 Neuroblastoma.
She was diagnosed on December 8th, 2007 in KK Women's and Children's hospital,Singapore. She had four rounds of Opec and Ojec Chemotherapy. And she had a twelve-hour surgery on April 2nd 2008. Then she had four rounds of N7 protocol since the biopsy of the tumor showed little response. She did two rounds of strong chemo( cyclophospha and topetecan)But the bone marrow trephine was still positive.
We came to Queen Mary Hospital Hong Kong on Oct2nd,2008 for further treatment. Xinxin had 2 cycle of chemotherapy (gemcitabine and oxaliplatin) and one round of 3F8.
Her disease had spread, very rapidly, to her pancreas and everywhere.
Xinxin passed away at 3pm on Jan 10th,2009(Saturday).Her last word is that DON'T WORRY ABOUT ME.
We miss Xinxin a lot but we won't worry about her anymore as she is living happily in God's arms.
As her parents we want to thank God for holding our hands walking with us and for giving us such a good gift that we learned a lot from and thank all the friends who are helping us. Thank you all for being our friends.
She was diagnosed on December 8th, 2007 in KK Women's and Children's hospital,Singapore. She had four rounds of Opec and Ojec Chemotherapy. And she had a twelve-hour surgery on April 2nd 2008. Then she had four rounds of N7 protocol since the biopsy of the tumor showed little response. She did two rounds of strong chemo( cyclophospha and topetecan)But the bone marrow trephine was still positive.
We came to Queen Mary Hospital Hong Kong on Oct2nd,2008 for further treatment. Xinxin had 2 cycle of chemotherapy (gemcitabine and oxaliplatin) and one round of 3F8.
Her disease had spread, very rapidly, to her pancreas and everywhere.
Xinxin passed away at 3pm on Jan 10th,2009(Saturday).Her last word is that DON'T WORRY ABOUT ME.
We miss Xinxin a lot but we won't worry about her anymore as she is living happily in God's arms.
As her parents we want to thank God for holding our hands walking with us and for giving us such a good gift that we learned a lot from and thank all the friends who are helping us. Thank you all for being our friends.
2 条评论:
Hi Joy, thanks for your message! I can feel for you. A friend of mine knew that I stopped working when Adrian was in treatment. She said I was "lucky" for not working... oh well, if someone truly think that it's "lucky", I wish she had my luck! It's hard to believe how insensitive some people are... Afterall, they had no ideas what we've gone through...
Take care,
Jenn & Adrian
Hi Joy,
You can tell us about Xinxin's last day please. Looking back, the last few days of Max's life were bittersweet. You've probably seen the video on the last morning he was alive. http://mikulak.blogspot.com/2008/08/max-passed-away-at-845pm-sunday-august.html. As difficult as it may seem, the last days of our children's lives on this earth remain most vivid in our memory. I hope you are able to share any of your memores - good or bad - with someone soon.
Andy, Max's dad
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