Can you believe it's the end of December already?
I wish everybody a happy and blessing new year in Year 2009.
Xinxin is more alert since the morphine was cutting down. Today the pain doctor and Dr. Chiang agree to put one more patch for Xinxin and the dosage of morphine will keep the same as yesterday-2.0 ml per hour.
We are transferred to a higher class room---two-person room, because they want Xinxin to have a good rest and I can also pay to sleep on the other bed so I can use the toilet and eat inside the room which helps us a lot. So today is the first day of my shower in the 40+days.( Usually, I had to use a basin in the toilet outside ward to wash quickly as Xinxin cried a lot after I left her for more than one minute).
It's really nice of the nurses to be so concerned and Dr. Chiang also did the best he can for us. He booked two bags of platelets everyday until next week though Xinxin's platelets is not too low--37. He worried of bleeding since it's going to be holiday and Xinxin's bone marrow is very weak after so many rounds of Chemotherapy.
Xinxin is using the peripheral line for platelets and other things because they put Vanco Lock in the portacath.They also did the blood culture for Xinxin, so far no results--no news is good news.
Please continue to pray for Xinxin.
We thank each and every one of you for the endless love, support and prayers in the past year.
Wish the best for all of you in the coming new year
Dec.30th,2008 Monday
The pain doctors met Dr. Chiang and finally decide to put a patch and cut down the morphine to see how it works. So far I think it is ok,because they just cut down the morphine base line into 2 ml per hour at 8 p.m. and they put the the patch at 12:00 noon time. Hope Xinxin will sleep well tonight and the pain doctors will come and decide whether they want to put more patch and cut down more morphine tomorrow. But anyway we have a PCA machine here,whenever she is in pain, we just press it and she will have a bonus 1.5ml.
And the blood culture result showed there is bacteria in the portacath, that's why she had fever a few days ago. So they will continue the antibiotics and repeat the blood culture later tomorrow or the day after. If it cannot be cleared, they will remove the portacath.Please pray that the antibiotics will clear the bacteria.
In the afternoon, Xinxin told me and her favorite CCF staff that she wanted to do some Art and Craft.Thanks to the CCF staff--Sister Tian, who helps to make her a key chain with her favorite colour--pink and yellow.
Thank you for praying and please continue to pray for us.
And the blood culture result showed there is bacteria in the portacath, that's why she had fever a few days ago. So they will continue the antibiotics and repeat the blood culture later tomorrow or the day after. If it cannot be cleared, they will remove the portacath.Please pray that the antibiotics will clear the bacteria.
In the afternoon, Xinxin told me and her favorite CCF staff that she wanted to do some Art and Craft.Thanks to the CCF staff--Sister Tian, who helps to make her a key chain with her favorite colour--pink and yellow.
Thank you for praying and please continue to pray for us.
Dec.29th, 2008 Monday
I was very sick yesterday-- headache and sleepy the whole afternoon and I
complained the daddy cannot help anything.
I was very worried about Xinxin,--if I am sick, she will cry because she needs only me to stay with her 24 hours a day.Thank God, He healed me last night after a cup of hot water and some back massage by the daddy.
Today one of the patients mummy came to ask me why I am always very strong and positive. Her kid is not having cancer, but she cried many times. Instead of telling her that I also cried many times, I asked her not to waste time for being sad,which is not helpful for our kids at all.
And I shared a video with her--a story about a man called Nick born without limbs.He shared his experience of God's love.
It was recommended by two of my good friends--Yanqiong and Emily.
Please make sure that you watch this video and learn to trust and praise God in ALL circumstances!
http://www.youtube.com/watch?v=OSRj7JqURjc&feature=related
Detailed infor about this strong man of God can be found at
http://www.lifewithoutlimbs.org/
Tomorrow Dr. Chiang will discuss the pain control with the pain team. Dr. Chiang is still the team head of this week. Our doctor--Dr. Chan is on leave and he came to see us before Christmas.
Actually the pain doctor came to Xinxin twice a week to give suggestions. But always our doctor will just make decisions by themselves.
Xinxin is still very tired and can not sleep very well. And she wake up several time during night.
Please continue to pray for her.
Thank you.
complained the daddy cannot help anything.
I was very worried about Xinxin,--if I am sick, she will cry because she needs only me to stay with her 24 hours a day.Thank God, He healed me last night after a cup of hot water and some back massage by the daddy.
Today one of the patients mummy came to ask me why I am always very strong and positive. Her kid is not having cancer, but she cried many times. Instead of telling her that I also cried many times, I asked her not to waste time for being sad,which is not helpful for our kids at all.
And I shared a video with her--a story about a man called Nick born without limbs.He shared his experience of God's love.
It was recommended by two of my good friends--Yanqiong and Emily.
Please make sure that you watch this video and learn to trust and praise God in ALL circumstances!
http://www.youtube.com/watch?v=OSRj7JqURjc&feature=related
Detailed infor about this strong man of God can be found at
http://www.lifewithoutlimbs.org/
Tomorrow Dr. Chiang will discuss the pain control with the pain team. Dr. Chiang is still the team head of this week. Our doctor--Dr. Chan is on leave and he came to see us before Christmas.
Actually the pain doctor came to Xinxin twice a week to give suggestions. But always our doctor will just make decisions by themselves.
Xinxin is still very tired and can not sleep very well. And she wake up several time during night.
Please continue to pray for her.
Thank you.
Dec.28th,2008 Sunday
Xinxin is still very tired and she was sleeping most of the day. She looks very puffy. We thank Dr. Chiang for his concern. Dr. Chiang called the ward to ask Xinxin's condition in the past few days and gave them the right instruction as he is the senior consultant in QMH.
We also thank those who are praying for Xinxin at the difficulty times.
Please continue to pray for her. Thank you.
We also thank those who are praying for Xinxin at the difficulty times.
Please continue to pray for her. Thank you.
Xinxin's works during the time when she was good enough to make cards for some of her hospital friends.Dec.27th,2008 Saturday
Xinxin is still very tired. She was sleeping most of the time.And she needs mummy to stay with her every minute.She had no interest in anything.She had a good time with daddy in the afternoon seeing daddy play her favorite computer games.
Our friend Xiaoling from Singapore came to see us in QMH. It's really nice of her to share with us her experience walking with God.
Please continue to pray for Xinxin.
Thank you
Our friend Xiaoling from Singapore came to see us in QMH. It's really nice of her to share with us her experience walking with God.
Please continue to pray for Xinxin.
Thank you
Dec.26th, 2008 Friday
Thank God, the fever is coming down.Please continue to pray for Xinxin.
Thank you.
Thank you.
Dec.25th,2008 Thursday
Xinxin had high fever in the morning.The doctor thought it was because of her disease since her count is very good. But they still gave her antibiotics to make sure.
She was very tired and was sleeping the whole day.
Please continue to pray for Xinxin.Thank you.
She was very tired and was sleeping the whole day.
Please continue to pray for Xinxin.Thank you.
Merry Christmas
Wishing you all a very Merry Christmas and all the best in the year to come , Gods blessings.
Xinxin still complained tummy pain and vomitted five times in the morning. But she felt better in the afternoon.
Please continue to pray for Xinxin.
Thank you.
Xinxin still complained tummy pain and vomitted five times in the morning. But she felt better in the afternoon.
Please continue to pray for Xinxin.
Thank you.
Dec.23rd,2008 Tuesday
Xinxin was having severe pain in the morning but we met her Doctor--Dr.Chan who was bringing students to do some research in the ward and Dr.Chiang also came back from the sick leave. So after discussing with them.They increased the dosage of the morphine (1.5ml per hour).
The whole afternoon, Xinxin was happy.My friend--Christina from Singapore sent Xinxin some books.We got it his morning.
Xinxin had a great time with the interesting books and she even made some Christmas cards by herself. It's a pity that I didn't take photos before Xinxin gave them to those who she likes here in QMH. It's really very nice of her to think of others.
Please continue to pray for Xinxin.
Thank you.
The whole afternoon, Xinxin was happy.My friend--Christina from Singapore sent Xinxin some books.We got it his morning.
Xinxin had a great time with the interesting books and she even made some Christmas cards by herself. It's a pity that I didn't take photos before Xinxin gave them to those who she likes here in QMH. It's really very nice of her to think of others.
Please continue to pray for Xinxin.
Thank you.
Dec.22nd, 2008 Monday
Xinxin is still not feeling well. She kept vomiting and looks very tired. The doctor told us if we wanted to go home, they could send medical staff to go with us to have a rest for a few days. But Xinxin didn't want because she is scared of pain. So I guess we will stay in QMH as long as her pain is under control.
Please continue to pray for Xinxin. Thank you.
Please continue to pray for Xinxin. Thank you.
Dec.21th,2008 Sunday
Xinxin is still in the tummy pain and the morphine was increased to 0.7ml in the morning and 0.8ml per hour in the afternoon.She is still vomiting many times.We definitely can not go home for the holiday.
Today Xinxin got her Christmas gift from the daddy--a pink blanked.We thought she would like it, because she always wants a soft blanked to hug every night.But maybe because of pain, she seems to be not interested and complained this was not the type she wanted.We will have to show it to her another day when she is feeling better.
Thank you for praying, and please continue to pray for Xinxin.
My God shall supply all your need according to His riches in glory by Christ Jesus.
Today Xinxin got her Christmas gift from the daddy--a pink blanked.We thought she would like it, because she always wants a soft blanked to hug every night.But maybe because of pain, she seems to be not interested and complained this was not the type she wanted.We will have to show it to her another day when she is feeling better.
Thank you for praying, and please continue to pray for Xinxin.
My God shall supply all your need according to His riches in glory by Christ Jesus.
Dec.20th,2008 Saturday
Xinxin is not complaining leg pain if I do not touch it.But her tummy is very painful She vomited ten times and she didn't eat anything. So today the dosage of morphine increase to 0.6 from 0.5ml per hour.She is very uncomfortable the whole day and how I wish I could be the one to suffer instead of her.
Please continue to pray for Xinxin.thank you.
Please continue to pray for Xinxin.thank you.
Dec.19th,2008 Friday
The dosage of the morphine is decreased from 0.6 to 0.5 ml per hour.xinxin has completed the RT for the leg. She is doing fine.
Please continue to pray for her.
Thank you.
Please continue to pray for her.
Thank you.
Dec.18th,2008 Thursday
Today Dr.Chiang decreases the dosage of Morphine from 0.8ml to 0,6 ml per hour. So far Xinxin is doing fine.
She is still not eating much depending on the TPN.Thanks to God, her liver function is still good.
Please say a prayer for Xinxin.
Thank you.
She is still not eating much depending on the TPN.Thanks to God, her liver function is still good.
Please say a prayer for Xinxin.
Thank you.
Dec.17th, 2008 Wednesday
Xinxin is still not eating but it seems that her pain is under control.The whole day she is busy playing computer games.
She was happy to get presents from our friends--Emily's family in Singapore and Howard from USA.I thank all these friends for cheering her up.
Please continue to pray for Xinxin.
And pray for one of our friends who is fighting relapsed Neroblastoma.The family are all Christian.
Thank you.
Beloved, don't say, "We can never know God's will. Sometimes He heals, sometimes He doesn't. He may prosper us, but He may also take away our prosperity." The Jesus of the Bible never made anyone sick. He never made anyone poor. He made the little become much with 12 baskets full of leftovers. (Matthew 14:20) He gave a net-breaking, boat-sinking load of fish to fishermen. (Luke 5:6–7)My friend, the Jesus of the Bible loves to heal, deliver, prosper and save people. This Jesus is the same yesterday, today, and forever. (Hebrews 13:8) And He says to you today, "If you had known Me, you would have known My Father also; and from now on you know Him and have seen Him." So you can know God's will for you. You can see what He will do for you when you know the Jesus of the Bible and what He did.
She was happy to get presents from our friends--Emily's family in Singapore and Howard from USA.I thank all these friends for cheering her up.
Please continue to pray for Xinxin.
And pray for one of our friends who is fighting relapsed Neroblastoma.The family are all Christian.
Thank you.
Beloved, don't say, "We can never know God's will. Sometimes He heals, sometimes He doesn't. He may prosper us, but He may also take away our prosperity." The Jesus of the Bible never made anyone sick. He never made anyone poor. He made the little become much with 12 baskets full of leftovers. (Matthew 14:20) He gave a net-breaking, boat-sinking load of fish to fishermen. (Luke 5:6–7)My friend, the Jesus of the Bible loves to heal, deliver, prosper and save people. This Jesus is the same yesterday, today, and forever. (Hebrews 13:8) And He says to you today, "If you had known Me, you would have known My Father also; and from now on you know Him and have seen Him." So you can know God's will for you. You can see what He will do for you when you know the Jesus of the Bible and what He did.
Dec.16th,2008 Tuesday
Xinxin is feeling a little bit better thought she is still in morphine and TPN.From today on till the end of this year, the head doctor of Ward7N becomes Dr.Chiang--who is a very patient doctor.It him took about half an hour to see Xinxin's situation.And finally, he decided to let Xinxin try one drug called Zomata from USA for the bone pain. It is not used to cure Nueroblastoma, but can release the pain from the bone.And he planned to discharge us before Chrismas if her pain is relief. It is really a good piece of news--at lease we know we might be able to go home for a few days.
Please continue to pray for Xinxin. Thank you.
Please continue to pray for Xinxin. Thank you.
Dec.15th,2008 Monday
Xinxin is still complaining pain once a while when she has nothing to do. She didn't eat anything today. But she had a good time with the CCF staff. She even cried when her favorite staff left.
Please continue to pray for her.Thank you.
Please continue to pray for her.Thank you.
Dec.14th,2008 Sunday
There was Another Christmas Party in the afternoon.And Xinxin felt well enough to sit in a big wheel chair to be in the party.
Dec.13th,2008 Saturday
There was a party for the sick kids in the Day Center.Xinxin was the only kid with the bed at the party, but she enjoyed herself although we don't understand Cantonese.
Dec.12th,2008 Friday
Praise the lord,Xinxin can sit up and play the computer games although she is still complaining pain here and there.
She didn't eat much as the previous days.
Tomorrow and Sunday we won't do the RT.So we will stay in the ward for pain control.
Please continue to pray for Xinxin.
Thank you.Wish you a blessing weekend.
She didn't eat much as the previous days.
Tomorrow and Sunday we won't do the RT.So we will stay in the ward for pain control.
Please continue to pray for Xinxin.
Thank you.Wish you a blessing weekend.
Dec.11th,2008, Thursday
Praise the lord.Xinxin didn't vomited out the Chemo drug after dividing it into twice.
But she didn't eat other things much except some Chocolate and four tiny oranges before sleeping. She is still in pain.But she had a good time with the CCF staff in the afternoon.
Please continue to pray for Xinxin.Thank you.
But she didn't eat other things much except some Chocolate and four tiny oranges before sleeping. She is still in pain.But she had a good time with the CCF staff in the afternoon.
Please continue to pray for Xinxin.Thank you.
Dec.10th,2008 Wednesday
Xinxin vomited the Chemo drug out again after she took it 10 minutes later. They will divide the amount(only 1.9ml) into twice and let her try tomorrow.
She didn't take anything except some Chocolate send by my friend Liulan's mother in the afternoon. And she also gave Xinxin a Huge stuff Bear which is very soft. So Xinxin had a happy time.
Liulan is our friend in Singapore and it's very nice of her mother to come to visit us in QMH for a few times already.
It's hard at this time for us and for Xinxin. She is really in pain even with morphine but she grasps every minute to enjoy when she feels a little better.
let's pray for Xinxin.Thank you.
She didn't take anything except some Chocolate send by my friend Liulan's mother in the afternoon. And she also gave Xinxin a Huge stuff Bear which is very soft. So Xinxin had a happy time.
Liulan is our friend in Singapore and it's very nice of her mother to come to visit us in QMH for a few times already.
It's hard at this time for us and for Xinxin. She is really in pain even with morphine but she grasps every minute to enjoy when she feels a little better.
let's pray for Xinxin.Thank you.
Dec9th,2008 Tuesday
Xinxin is still in pain.We met her doctor Dr.Chan.He is going to use another drug for the bone besides the oral chemo. Xinxin vomited the oral drug out this morning 10 minutes after she took it. And the doctor didn't repeat it.
But she had a good time with the CCF staff this afternoon for a while.
And she also had a good time with the gifts from my friends in Singapore. My friend LiuJun came to see us in the hospital and brought some toys and my friend Chenjian also send us a lot (10kg) of Xinxin's favorite food.
I want to thank all these good friends who make her time different at this moment.
Please continue to pray for Xinxin.
Thank you.
But she had a good time with the CCF staff this afternoon for a while.
And she also had a good time with the gifts from my friends in Singapore. My friend LiuJun came to see us in the hospital and brought some toys and my friend Chenjian also send us a lot (10kg) of Xinxin's favorite food.
I want to thank all these good friends who make her time different at this moment.
Please continue to pray for Xinxin.
Thank you.
Dec.8th,2008 Monday
Xinxin did the RT for both the legs today and it seems that her right leg is still in pain although it is the last RT for the right one today.Maybe it takes a few more weeks for RT to have effect.
She had some of her favorite snacks today and she had some of my lunch brought by the grandpa. She missed the home cook food a lot.
Dear friend, Xinxin was diagnosed last year today. During the past year,our family have experienced God's goodness. We are very grateful and thankful for God's guidance.
We are really fortunate that we have lots of friends supporting us by our side, share our joy and sorrow
Of course, it is very sad to see my precious girl suffer. But I thank God for giving me the power to cry. Sadness is a gift just give me guidance on when to use it. I know Jesus walks beside all of us, I will listen with my heart and allow me to hear his footsteps.
Thank you all for those who are praying constantly for Xin Xin and helping us.You are the reason we can carry on. Thank you for your loving care.
Please continue to pray for us.
She had some of her favorite snacks today and she had some of my lunch brought by the grandpa. She missed the home cook food a lot.
Dear friend, Xinxin was diagnosed last year today. During the past year,our family have experienced God's goodness. We are very grateful and thankful for God's guidance.
We are really fortunate that we have lots of friends supporting us by our side, share our joy and sorrow
Of course, it is very sad to see my precious girl suffer. But I thank God for giving me the power to cry. Sadness is a gift just give me guidance on when to use it. I know Jesus walks beside all of us, I will listen with my heart and allow me to hear his footsteps.
Thank you all for those who are praying constantly for Xin Xin and helping us.You are the reason we can carry on. Thank you for your loving care.
Please continue to pray for us.
Dec.7th,2008 Sunday
Xinxin is still in pain with the morphine.The whole day she asked me to play her favorite games and she just watch me do it.
She told me that her friend George (a stuff monkey) wanted to go home. I asked her what she told him.' to bear a few more days'
My friend, Liulan's mother came to see Xinxin, but visitors are not allowed here.We feel sorry about it.
Please continue to pray for Xinxin.Thank you.
She told me that her friend George (a stuff monkey) wanted to go home. I asked her what she told him.' to bear a few more days'
My friend, Liulan's mother came to see Xinxin, but visitors are not allowed here.We feel sorry about it.
Please continue to pray for Xinxin.Thank you.
Dec.6th,2008 Saturday
Xinxin is still in pain and we will have to wait until next Monday for the RT for both legs.(right leg for the last day and left leg for the first day) So they increase the dosage of the morphine, which helped a little bit.
Please continue to pray for Xinxin.Thank you.
Please continue to pray for Xinxin.Thank you.
Dec.5th,2008 Friday
Thanks to the God, Xinxin didn't vomit the Oral Chemo out in the afternoon though she complained tummy upset after taking it.She started to complain the left leg pain and we have an appointment for RT next Monday.
Xinxin had a little bit Chocolate for the first time after her sickness for one year.And she was so happy for that. And she told the grandfather she is going to be cured soon.
Let's pray for it.
Thank you for our prayers.
Wish all of you a blessed weekend.
Xinxin had a little bit Chocolate for the first time after her sickness for one year.And she was so happy for that. And she told the grandfather she is going to be cured soon.
Let's pray for it.
Thank you for our prayers.
Wish all of you a blessed weekend.
Dec.4th,2008 Thursday
Xinxin started to have the Oral Arsenic Frioxide this morning, but she vomited it out ten minutes later.The doctor didn't want to repeat it since they didn't want to give her more than she needs.
She is still complaining pain here and there.
Please continue to pray for her.Thank you.
She is still complaining pain here and there.
Please continue to pray for her.Thank you.
Dec.4th,2008 Thursday
Xinxin started to have the Oral Arsenic Frioxide this morning, but she vomited it out ten minutes later.The doctor didn't want to repeat it since they didn't want to give her more than she needs.
She is still complaining pain here and there.
Please continue to pray for her.Thank you.
She is still complaining pain here and there.
Please continue to pray for her.Thank you.
Dec.3rd,2008 Wednesday
Xinxin is still complaining pain here and there.So she is still on Morphine and TPN.
She will start the new treatment tomorrow. She is planned to take the Oral Arsenic Frioxide for two weeks.
Please continue to pray for Xinxin.Thank you.
She will start the new treatment tomorrow. She is planned to take the Oral Arsenic Frioxide for two weeks.
Please continue to pray for Xinxin.Thank you.
Dec.2nd 2008 Tuesday
Xinxin still feels painful but she sat up in the afternoon to play some games with the CCF staff while Dr. Chan was talking to me about Xinxin's situation.
Before our talk, the doctors had a meeting for Xinxin's case. They will gave her some oral Arsenic Frioxide to try.
And if it works on her, then will followed by 3F8.
In QMH, many years ago, all together 13 patients used the drug and two are still alive. They didn't use it now,because they have 3F8, and all the patients are responding very well.
Please continue to pray for Xinxin.Thank you.
Before our talk, the doctors had a meeting for Xinxin's case. They will gave her some oral Arsenic Frioxide to try.
And if it works on her, then will followed by 3F8.
In QMH, many years ago, all together 13 patients used the drug and two are still alive. They didn't use it now,because they have 3F8, and all the patients are responding very well.
Please continue to pray for Xinxin.Thank you.
Dec.1st,2008 Monday
Thank you for all your emails and messages, we appreciate your kind encouragement.
We thank God for sending all the friends to help us and giving us strength to face the difficulty.
Xinxin did the RT at 11;30 am, and I found her leg is not so puffy as I took the brace off. But she is still complain pain here and there.
She had some noodles and porridge for lunch, but didn't have appetite for breakfast and dinner.
Please continue to say a prayers for Xinxin.
We thank God for sending all the friends to help us and giving us strength to face the difficulty.
Xinxin did the RT at 11;30 am, and I found her leg is not so puffy as I took the brace off. But she is still complain pain here and there.
She had some noodles and porridge for lunch, but didn't have appetite for breakfast and dinner.
Please continue to say a prayers for Xinxin.
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